Delhi High Court Urged a National Health Policy for Rare Diseases

The Centre has received an order to finalize the National Health Policy for Rare Diseases by March 31.

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Delhi High Court Urged a National Health Policy for Rare Diseases the policy times

On March 23, the High Court of Delhi ordered the Centre about finalizing the National Health Policy. A major report stated that 70 million patients in India live with a rare disease for which affordable treatment is still a long way away.

What Kind of a Health Policy Does India Need?

Rare diseases are considered to affect a small proportion of the population but when taken in actual numbers for a country like India, then adequate attention is most needed. In India, 450 rare diseases are reported up to now. This country needs a health care policy that can address the major challenges like the excessive cost of treatment and the lifelong care of the patients. The policy must be of a kind that is beneficial to all sections of the rare disease community.

Also Read: Spike in Health Crisis of India; 63% of Funds Not Spent by States and UTs

Is Health Funding a Major issue in India?

In India, due to a lack of treatment funds, the common people impacted by rare diseases suffer a lot. Only in Karnataka, free treatment is available to everyone suffering from LSD, and PID. Health funding for rare diseases is a major issue in India. For all the identified rare diseases, the government must issue health protocols so that proper treatment is given to everyone despite having no funds.

TPT Policy Advocacy & Recommendations

  • The healthcare system in India is deteriorating day by day. The Government must implement proper medical devices and also major health policies so that India can address the challenge of lifelong care of the patients.
  • The publicity of the clinical trials is much required to break the language barriers. The public healthcare system in India is continuously facing formidable challenges. The Health Ministry must look over the matter well so that the health system in India gets improved.
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Delhi High Court Urged a National Health Policy for Rare Diseases
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The Centre has received an order to finalize the National Health Policy for Rare Diseases by March 31.
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THE POLICY TIMES
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